A Better Way to Measure MS Progression
The Buffalo Neuroimaging Analysis Center (BNAC) is a world-class center for MS research. As with all academic research, however, it can be difficult for patients
The Buffalo Neuroimaging Analysis Center (BNAC) is a world-class center for MS research. As with all academic research, however, it can be difficult for patients
I don’t want to be an inspiration. I only want to inspire. If you exhibit visible MS symptoms then someone, somewhere, sometime may have called
I have no excuse. Here is something of an update. It’s the least I can do. My health has deteriorated at about the same pace
If you are fortunate enough to be in a position to contribute to charitable causes, I ask you to consider this organization so close to
Clinical Trial Opportunity I love what they are doing at the University of Pittsburgh Department of Rehabilitation Science and Technology. These folks are investigating the
I would never say that someone has only a little multiple sclerosis. It’s a horrible disease in all its manifestations. But I’m quite comfortable in
I was recently asked to give a talk at a TEDx event at Cape Elizabeth High School. Of course, I couldn’t do it without Kim,
My passion these days, and the primary reason I have been neglecting my blog of late, is accessible housing and 3i Housing of Maine. We
I am proud to serve as a Board member with 3i HoME, a non-profit on a mission to effect real change for our families, friends,
Last week marked the 20-year anniversary of my MS diagnosis. As a society, we place extra emphasis on round-number anniversaries like the 20th. But for
Marva Serotkin, a friend of mine and a tireless disability advocate, helped develop this four-part web series entitled Disability and the American Past. Sign up
Check out the article by clicking here.
Warning: this is a story about a man and his pee. I’ve done everything possible to avoid a suprapubic catheter (SPC). To me, it meant
My friends and family all thought I would be among the first to get a vaccine because, as we say in Maine, I’m a hurtin’
Although I agreed to wear a mask whenever I left the house for most of 2020, I was physically unable to put it on or
This fall I finally dug into Mitch Sturgeon’s memoir, Enjoying the Ride: Two Generations of Tragedy & Triumph.1 I don’t often trust memoirs, but I trust
I belong to a nonprofit organization, 3i Housing of Maine, whose mission is to provide supportive housing for non-elderly adults with physical disabilities. We are
As of this writing, the coronavirus pandemic has never been worse. Records for infections are being shattered. Hospitals are overrun. Death counts are soaring. Yet,
Down East Magazine is considered the gold standard for showcasing our beautiful state of Maine, hands down. So, when they published an essay of mine