On Wednesday, March 16, 2011, I will undergo a second round of CCSVI treatment, in a determined if not desperate attempt to slow the progression
Image via Wikipedia Last year I posted my first two rounds of the “Which Would You Rather Have” discussions. I compared progressive disability to sudden
I was unsure how my disability income would be taxed, so I erred on the safe side and had Kim withhold more money from her
(Photo credit: circulating) How many times have you wished for a crystal ball? It’s human nature. We long to know what the future holds. But
I wrote two posts earlier, here and here, about the five houses that Kim and I have owned so far. With the last three houses,
I’m fascinated by quotations. It’s one thing to make your point in a paragraph, a chapter, or a book. But it’s quite another thing to
… I bet 30 of them think something like, “Wow, that is strange, but I’m going to carry on as if it’s nothing interesting at
(Photo credit: Wikipedia) “It is not bigotry to be certain we are right; but it is bigotry to be unable to imagine how we might
“If I only had a little humility, I’d be perfect.” – Ted Turner I’m predisposed to enjoy solitary pursuits like reading a good book,
I think it is supposed to be 15 minutes of fame, according to Andy Warhol, but you take what you can get, right? A couple
Image via WikipediaThis year I endured disabled surgery And read disabled books I contributed to a disabled charity And thwarted disabled crooks I sailed on
I was interviewed by a Canadian magazine about my experiences with MS and CCSVI. The overall story starts on page 16. My input is on
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I know that there should be a playoff system in College Football. I believe that someday there will be one. I know that I can
I did a little wheelchair deer hunting today. I got a stuck in the mud for a while, but the iBot came through for me. Was Kim
For over two years I’ve been perpetrating a fraud by posing as a full-time wheelchair user. It’s a big, fat lie, and I need to
(Photo credit: Coventry City Council) I know this blog is supposed to be about leading a contented life as a disabled person. But there is
The interviewer, Lisa Emrich, maintains the blogs Carnival of MS Bloggers and Brass and Ivory. To read the interview click here.
Here is a photo montage I threw together. Enjoy. Fall in Maine 2010
(Photo credit: nepolon) Some Things I Miss 1. Standing up to pee You ladies may not appreciate this, but the ability to stand up and
Post Script: This cyber criminal is now using the name Kimberly Locke. In my previous post I told the story of how a cybercriminal posed
Image via Wikipedia Post Script: This cyber criminal is now using the name Kimberly Locke. I’m predisposed to consider Life to be a wonderful thing.
(Photo credit: Wikipedia) I spend a lot of time thinking. I think about things like what came before the Big Bang? If the universe is
(Photo credit: Wikipedia) From Dictionary.com: fu·nam·bu·list [fyoo-nam-byuh-list] –noun a tightrope walker. Those of us with chronic diseases hear conflicting advice on how we should best
“The truth does not change according to our ability to stomach it.” – Flannery O’Connor Here’s a bit of truth: CCSVI treatment didn’t work for
In the previous post I introduced my “pearls of wisdom,” presenting and briefly discussing the first 10 items on that list. Here are the remaining items:
(Photo credit: Steven Betts) …or something like that. Although my progression from a healthy person to a handicapped person was slow and steady, my transition
(Photo credit: Wikipedia) I’m not a voracious reader, but I am a steady one. I always have a book going. In the nine years since my
I made my first blog post on July 22, 2009, called Let’s Get This Party Started. I’ve been so busy these past few weeks that
Image by meironke via Flickr It is only possible to live happily ever after on a day-to-day basis. – Margaret Bonnano Now that Kim
First, CCSVI Alliance, the 501(c)(3) non-profit organization that I volunteer for, had some good media coverage. Check out this link. Doesn’t their president, Sharon Richardson,
Check out my latest iBOT action video. To see my other iBOT videos, look on the right-hand sidebar of my blog. Enjoy!
Such as… “What if this weren’t a hypothetical question?” And, stuff like the following little conundrum. On Wednesday I took my handcycle for a ride. I
The answer is yes. You have seen many black swans. Allow me to explain… Most of us embrace the illusion that the things we plan
(Photo credit: Wikipedia) It’s the year 2000. My wife and I have decided to move three hours away from the only town my kids have
Imagine for a moment that you can’t walk. Don’t worry- it’s just pretend. Then, imagine that one day you discover a device that gives you
Everyone wants to know how I’m doing after my CCSVI procedure. The answer is…I feel exactly the same as I did before my visit to
After four consecutive days of visiting magnificent ports of call, we were looking forward to a full day at sea, just us and our faithful
On Friday, the mind games began. Sometimes it’s like there are two people inside of me. No, I’m not schizophrenic. On one level I was
“Oh CRAP!” These words, or some slightly more profane, were the first I uttered on Thursday morning of my cruise, as our ship was approaching George Town,
I don’t know how to best describe Ocho Rios, Jamaica, our second port of call. Clearly, Jamaica is not a manufactured little town like Labadee,
I’ve been asked several times what my favorite part of the cruise was. I can’t decide. Here are some candidates: breathtaking scenery clear, blue water
Like so many family-oriented couples, Kim and I found ourselves approaching the empty nest stage of our lives having never enjoyed a romantic vacation without
Life is like a movie-since there aren’t any commercial breaks, you have to get up and go to the bathroom in the middle of it.
(Photo credit: Wikipedia) The world is a tragedy to those who feel, but a comedy to those who think. – Horace Walpole My journey through
In Log Entry #6 I wrote about what the experience was like for me during the actual CCSVI procedure. Here, in Log Entry #7, I’ll
“Life is either a daring adventure or nothing.” Helen Keller I can’t recall the precise moment when I decided that CCSVI was a legitimate theory
Just a short note to let everyone know that today’s procedure went well. Dr. Sclafani successfully used angioplasty on both of my jugular veins and
I have a couple of hours to kill before I leave for the hospital this morning for my CCSVI venogram and possible angioplasty, so I
The most exciting phrase to hear in science, the one that heralds new discoveries, is not ‘Eureka!’ (I found it!) but ‘That’s funny …’
Today was a day of hurry up and wait. Nothing accomplished other than paperwork, etc. Tomorrow should be busy with MRV, Ultrasound, and consults. It’s
(Photo credit: Wikipedia) As I indicated in my previous post, this is my CCSVI week- diagnosis and hopefully treatment. I plan to update this blog
(Photo credit: The Fayj) “There are risks and costs to a program of action. But they are far less than the long-range risks and costs
Image via Wikipedia “If you’re going through hell, keep going.” ~Winston Churchill Last week I posed the question- which would you rather have, progressive disability
Despite my illness, and the challenges it presents, I still find moments of supreme joy in life. Sometimes I share these with my lovely wife,
(Photo credit: Wikipedia) What I’m about to do is crass and uncouth. You may find it so disturbing that you will not only skip over
Click here to see this cool video I found at Stu’s Views & M.S. News. It makes you think.
(Photo credit: jurvetson) My wife and I both agree that there were only three things in my life that ever really made me angry. Other
One of the frustrating realities of living with MS is that nobody has a clue as to its root cause. It’s hard to imagine that
The Top 10 Reasons Why I Hate MS (at least my version of MS) 10. Accessibility problems in general, bathrooms in particular. 9. MS costs
What am I doing here anyway? This was not the plan. When I started my blog after leaving the workforce earlier this year, I did
A greater line of bullshit has never been uttered. Who are the people saying this? 1. Successful athletes while hoisting their championship trophy. 2. Successful businesspeople giving
My wife stood out among the rest of the high school freshman because of her nice ass and playful personality. Those were the criteria I
In the top right hand corner of the page…enjoy. Or watch it here.