(Photo credit: Sean MacEntee) For those of us afflicted with a progressive, incurable disease, time is not on our side. The younger the patient, the more likely he or she will eventually benefit from life-changing advances in medical technology. But I am fast approaching that age and that level of disability where my own prospects …
“There…we are done. I’ll see you in recovery,” said Dr. Siskin. One more CCSVI procedure was now in my rearview mirror. I don’t dread these- it’s not like real surgery- but still, it’s a relief when they withdraw that wire from your groin. I was wheeled back into the prep room, which doubled as the …
On Wednesday, March 16, 2011, I will undergo a second round of CCSVI treatment, in a determined if not desperate attempt to slow the progression of my MS. This procedure will be performed by Dr. Gary Siskin, the chairman of the Radiology Department at Albany Medical Center. Why am I putting myself through this? Haven’t …
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(Photo credit: circulating) How many times have you wished for a crystal ball? It’s human nature. We long to know what the future holds. But what if you already understood that your prospects were bleak? Would you want to know precisely how bleak, or would that serve no useful purpose? Unfortunately, I’m not given a …
“If I only had a little humility, I’d be perfect.” – Ted Turner I’m predisposed to enjoy solitary pursuits like reading a good book, sitting by the fire, or watching quality TV. But once in a while I get the urge to abandon my safe haven and venture into the disabled-unfriendly world beyond, usually …
I think it is supposed to be 15 minutes of fame, according to Andy Warhol, but you take what you can get, right? A couple of months ago I was contacted by a producer for the History Channel show called Modern Marvels. They were doing a piece on the Segway (a cousin of the iBot …
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Image via WikipediaThis year I endured disabled surgery And read disabled books I contributed to a disabled charity And thwarted disabled crooks I sailed on a disabled cruise And piloted my disabled iBot I sat for disabled interviews And the good disabled fight, I fought I starved myself on a disabled diet And took a …
(Photo credit: nepolon) Some Things I Miss 1. Standing up to pee You ladies may not appreciate this, but the ability to stand up and pee five to ten times a day (depending on beer consumption rate), without dropping your pants and with at least a fair chance of hitting your target, is perhaps the …
Continue reading “Some Things I Miss (and a Few Things I Don’t)”
I made my first blog post on July 22, 2009, called Let’s Get This Party Started. I’ve been so busy these past few weeks that only today did I realize that I missed my one year anniversary. Good thing this blog is not a woman… In my first year of blogging I posted 86 times. …
Continue reading “One Year Anniversary of “Enjoying the Ride””
The answer is yes. You have seen many black swans. Allow me to explain… Most of us embrace the illusion that the things we plan for will actually happen, and that the events that so-called “experts” predict will likely come to pass. We behave as if we live in a world that is stable, predictable, …