What I Remember and What I Don’t

I can remember my childhood telephone number: 207-794-8247
But I can’t remember the current cell phone number for either of my children.

I do remember where I was when the planes crashed on 9/11 and when I heard about the Space Shuttle Challenger explosion.
However, I don’t remember President Kennedy being shot seven weeks after I was born.

I remember a lot of things from my college graduation ceremony.
But I don’t remember finding out that I was accepted into college.

I can’t shake the image of Billy Buckner letting a routine ground ball go between his legs in what should have been the final out of the 1986 World Series, or whose house I watched it at in Cleveland, Ohio, or the premature, tear jerking victory speech I made just before it happened.
Yet I don’t have an image in my mind of my daughter taking her first steps.

I do remember every room in all six houses that we’ve ever owned.
I just can’t remember where we keep the broom in this house.

I remember turning fifty. It was a blast.
I don’t remember turning twenty-one. I assume I got very drunk.

I vividly recall the births of both of my children.
But I can’t remember finding out Kim was pregnant, either time.

I have at least partial memories of when my brother became temporarily blind (I was two and a half years old) and when my father told me about my mother’s accident (five years, eleven months old).
But I can’t remember a joke, not a single joke. And I can’t remember the name of that guy, you know, that guy with the thing…

I remember being diagnosed with multiple sclerosis.
But I cannot remember the last time I walked. I haven’t forgotten what it feels like, though, because I still walk in my dreams.

What can you remember? What can’t you?

Memories: The Ghosts of Christmas Past

From time to time I will post Memories, where I describe some facet of my life before MS. I hope you enjoy these digressions.
Growing up,
our Christmases were right out of Currier and Ives: cold and snowy weather, traditional holiday treats, family, gifts, mistletoe.  I remember those Decembers fondly and miss them
terribly.
In grade
school, on the last day before Christmas vacation, a local radio station would
record each homeroom class singing a different Christmas carol, often of the
religious variety – it was a nonissue in those days. On Christmas Eve, at the
appointed time, we would huddle around the radio at home and listen for our
song. It was played only once, so you had to be ready.
My parents hosted
what they called an Open House on Christmas
Eve. To me, it was just a big party that started in the afternoon and lasted
until late at night. My mother, a quadriplegic, was universally loved in
our town. She had been through so much pain, yet had endured it with uncommon
grace and good spirit. I think a major reason we had such a strong turnout each
year was because people just wanted to be around Vernice, especially at Christmastime.
The guests
would enter our house amid great fanfare. Most would bring something delicious and homemade. But the favorite visitors were the ones who placed a
fifth or half-gallon of Jack Daniels under the tree for Dad. My father was a
social, happy drinker. I never considered that he had a drinking
problem, and looking back I still don’t. In fact, I enjoyed being around Dad when he was into
the Jack and water. He was a purist in this regard. If you insisted on soda or
some other mixer, you were served Jim Beam, a lesser grade of bourbon.
When I was a
young boy the adults would shuffle me off to bed at a decent hour, employing the
old adage, “The sooner you get to bed and to sleep, the sooner Santa will
come.” But, in fact, although I may have gone to bed I would often lay awake for
hours listening to the loud, alcohol-fueled conversations drifting down the
hallway from the kitchen and living room. I loved to eavesdrop on the stories
that I was otherwise not allowed to hear. Christmas Eve was the most
educational day of the year for me.
When I was in
high school, and Kim was my girlfriend, there was another aspect of Christmas
Eve that worked out very well for us. Danny and Darlene, neighbors from across
the street, would come over to the party for a couple of hours. During that
time Kim and I would babysit their two sleeping children. Danny and Darlene had a water bed. Enough said?
When I was in college,
my brothers and other people my age became the late-night partiers, staying up long after my aging parents. I wonder if Mom and Dad eavesdropped on our
loud conversations and became educated about things that they otherwise
wouldn’t have.
Then one year,
out of the blue, my mother told me that there would be no more Christmas Eve open houses for the next seven years. I was incredulous. “Why?” 
My father was
a shift foreman at the paper mill. He worked a rotating schedule called the
southern swing. They knew that for the next seven Christmas Eves he would be
working the 3 PM to 11 PM shift, and so there would be no parties. I was
heartbroken. That tradition was my favorite part of Christmas. Sadly, everyone
in town moved on and developed new Christmas Eve traditions, and my parents
grew old. The Christmas Eve open houses never resumed.
And now having
written this piece, I realize how very much I miss my parents, all of
my friends and relatives who are no longer with us, and this simpler time in our lives. The ghosts of Christmas
past do indeed haunt me. 

Memories – Old Doc Gulesian’s House

From time to time I will post Memories, where I describe some facet of my life before MS. I hope you enjoy these digressions.

I grew up in the small, northern Maine town of Lincoln, where there were only a handful of doctors. Our family physician, who moonlighted as the town coroner, was affectionately known as Old Doc Gulesian. He delivered me, and I understand that my birth was very complicated. He operated the Gulesian Hospital in Lincoln from 1947 through 1972 in what was nothing more than a large house. Doc was a short, powerfully built, gregarious character. He often had a cigar in his mouth, but it was more for chewing on than it was for smoking.

His son, Doctor Gulesian the Dentist, was physically similar to his father, but less intimidating. Whenever I needed a tooth filled, and I needed a lot of them, he led me through the same routine. First, he would take a Q-tip with some gunk on it and set it beside whichever tooth he was going to work on. After a few minutes he would remove the Q-tip and say, “Close your eyes and cross your legs.” This never changed, and at no time did I peek, or even question why he made this strange request. I would feel a pinch in my mouth, and then Doctor Gulesian the Dentist would tell me it was okay to open my eyes. A few minutes later my mouth would be completely numb. I thought the numbness was from the topical anesthesia on the Q-tip. I didn’t learn until years later, when I watched him do some dental work on my mother, that he was actually taking a syringe and giving people a shot of Novocain. I was flabbergasted! A shot? Right in the mouth? To this day I still close my eyes when I see the needle coming.

1994 850 fall New houseThese father and son doctors lived across the street from one another on Transalpine Avenue. Old Doc Gulesian’s house was a sprawling ranch-style home. The full basement was expansive, and this is where he set up his medical practice in the 1970’s. There was a separate entrance for the basement office, so we never saw his above-ground living space. The carpet on the floor of the examining rooms was memorable. It depicted all sorts of board games like chess, checkers, and backgammon. I visited his office many times in my childhood, and never forgot that carpet.

After high school I went away to college, got married, and lived for a while in Ohio and Vermont. But eventually Kim and I returned to Lincoln, where I went to work as a chemical engineer in the local paper mill, and Kim began her teaching career. We bought a home and started making babies. Our extended families lived nearby, and we had many, many friends. It was an ideal situation – until we got sick of it. But that’s another story.

Kim’s mother, Carole, dabbled in a few different vocations over the years. For a short time she was a real estate agent. One day she came over, and we thumbed through her listings book. We noticed that Old Doc Gulesian, now retired, was selling his house. I had only seen the basement office, never the inside of the home. I suggested to Carole that we pose as prospective buyers and that she show us the house. She could practice her selling skills, and we could satisfy our curiosity as to what Old Doc Gulesian’s living space looked like. It was shameless voyeurism.

The house was impressive, if a little dated. Old Doc Gulesian, after all, had become a very old man. There were three bedrooms and three baths on the main floor and one bath in the basement. There was an attached, heated, three-car garage. The backyard had a neglected but salvageable in-ground swimming pool, which was a rarity for this small town. One bay of the garage even had a maintenance pit that could be used when changing the oil in a vehicle. The house sat on two wooded acres in a nice part of town.

When we got home, Kim and I continued to talk about our experience. I dared to broach the subject with her, “What if we sold this house? Then we could buy old Doc Gulesian’s house. How cool would that be?”

In addition to being a wonderful property, there was also a certain celebrity appeal to Old Doc Gulesian’s house. In our small town, buying his house would be like someone in Southern California buying a movie star’s house.

Things progressed quickly. Within a couple months we were able to sell our property and purchase Doc’s.

As soon as we moved in the house Kim and I went downstairs and explored the old doctor’s office, which hadn’t been used in years but remained intact. I basked in the nostalgia for a few minutes, and then I grabbed my chainsaw. I cut down all the internal walls to make a huge rec room. Over time, we purchased a bar, a ping-pong table, a billiards table, and added a couch and a television. The only thing we left untouched was that one-of-a-kind carpet depicting the board games. It kind of matched our motif.

For several years we would occasionally see Doc inch by our house in his big Cadillac, surveying the property but never stopping in to visit. I’m sure he had fond memories of the place, and apparently had trouble letting go.

We lived in Old Doc Gulesian’s house for seven wonderful years. Eventually the novelty of living in my childhood doctor’s home wore off, and it just became our house on Transalpine Avenue. If for no other reason than the sheer number of memorable photographs we took there, that house holds a special place in our hearts. Here are a few of those pictures…

1995 766 ish 1995 7701996 504a
  Amy 1996Amy, Zach, Ted- 1996Zach's 5th Bday- Vernice, Amy, Zach, Kim- XAlpine Ave house...Summer 1997

Amy, Ebony, Zach- Edwards St. House...December 2007 Amy, Robbie Porter- Basement of XAlpine Ave House...Summer 1997 Zach- first day of pre K- XAlpine Ave house...summer 1997
 Amy, Ebony- 1st day of 5th grade- 1999Kim the Painter- 06/2000

Memories: Golf’s Cruelest Trick

Golf Green Island
(Photo credit: jurvetson)

My wife and I both agree that there were only three things in my life that ever really made me angry. Other than these tormentors, I have always been a pretty calm character.

First, there was my 20-year-old daughter. Well, she’s 20 years old now, but she’s not the one that drove me crazy. It was the teenage version of her that drove me crazy. She’s grown into a fine young woman and we get along quite well now.

The second thing that drove me crazy was the play of my sports teams. Sometimes they did the stupidest things even though I’d instructed them, via yelling at them on the TV, to do otherwise. Why wouldn’t they listen?

The third thing that drove me crazy was golf. Before I became disabled I was a decent athlete. I could run fast and jump high. I could hit and catch a ball, and make a basket. In high school I was a three sport athlete (football, basketball or indoor track, outdoor track). I also played a passable game of tennis and ping pong. After having a billiard table in my basement for a few years I could hold my own at pool. But golf? I could never understand that game, except one day a long time ago…

Our daughter Amy was born in May of 1989, well before my MS diagnosis. One Sunday morning that summer I took my turn with the 4:30 a.m. bottle feeding. I put Amy back in her crib at around 5:00 and prepared to return to bed myself. But I had just purchased a golf membership at the local 9-hole course, and it was a beautiful morning, so instead I quietly snuck out of the house and headed for the golf course.

When I got to the course nobody was there. The clubhouse was dark and quiet, but that was not a problem. The flags were in the holes and I had a membership, so I set out to play.

The first hole was a par four. I have no idea what I scored on it, but likely something well over par. The second hole was a 172 yard par three. I pulled out my 3 iron (this is evidence to any experienced golfer that I was a neophyte since the standard club for this length shot is more like a 5 iron, and Tiger would use an 8 iron if his wife is not chasing him with it). My tee shot went straight and rather low, as is standard for a well struck 3 iron.

The hole was cut just over a ridge in the green, so that I could not actually see the cup from the tee box. Most of the flag stick was visible, just not the last couple of inches and the cup itself. I was pleased with my shot because it appeared to have landed either close to the front of the green or on the green itself. I put my three iron back in my bag and trudged down the fairway.

As I approached the green I was a little disappointed. The ball was neither in front of the green nor on the green, so it must have run past the putting surface. There were some shrubs behind the green, and I started looking under those shrubs for my missing ball.

Then it happened. Remember, it was very early in the morning, just after sunrise, so there was still a heavy dew on the green. I stood there in disbelief as I noticed a curved track in the dew, running from the front of the green into the center of the cup, as clear as if it had been drawn by the finger of God himself. I shook my head in disbelief.

I approached the cup and dared to peer down into it. There was my ball. I had made a hole-in-one. Instinctively, I looked up and surveyed my surroundings in preparation for sharing this glorious moment with my fellow golfers. Let the congratulatory hand shaking and back slapping begin! But there was not another human being in sight. Well, that was not exactly correct. I could see the owner stirring up near the clubhouse. I left my golf bag beside the green and jogged up to where he was cleaning off the golf carts.

“Good morning, Jim.”

“Good morning, Mitch.”

“Jim, I have a problem.”

“What? Is it the mosquitoes?”

“No,” I chuckled, “I just shot a hole-in-one and I have no witnesses. But I can prove it to you if you’ll just come with me for a minute.”

We got in a golf cart and headed off for the second green.

For those of you who are not familiar with golf etiquette, holes-in-one really only count if they are witnessed. Otherwise any unscrupulous, attention-seeking hack could claim he hit one when nobody was watching. I was a hack, but I was of the scrupulous variety.

When we arrived at the second green I was pleased to see that the dew, and the evidence it possessed, was still intact. I told Jim my story and asked him if he believed me.

“I believe you Mitch.”

That didn’t make my hole-in-one completely legitimate, but it was better than nothing. I never got another ace, witnessed or not, even though I golfed for about 15 more frustrating years.

In a sense this was the cruelest trick golf ever played on me, and it played some really cruel ones. To allow me a hole-in-one, but without a witnesses…ah, touché golf. Well played.

MS really sucks. But there are one or two silver linings. MS gets the credit for finally making me a quit a game that cost me too much money, caused me to spend too much time away from my family, and left me miserable more often than not. Unfortunately, MS took all those other sports away from me as well.

So as I mentioned above, my daughter no longer drives me crazy. Scratch that one off the list. My MS had made it impossible for me to continue golfing. Scratch that one too. What’s left?

If the Patriots and Red Sox can just win every game they play for the rest of my life…no, wait, that’s not enough…if the Patriots and Red Sox will never make even a minor mistake in any game they ever play for the rest of my life, then I’ll have nothing in this world that makes me angry.

(I’m aware of how well I just set up the Boston sports haters…have at it in the comments section, Louie).

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