MITCH STURGEON
Author and Blogger Living With MS
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Sometimes, I feel the itch to do things I used to do before MS, like travel, hike, golf, and stand up to pee. Recently, I’ve felt the itch to socialize with people, like I did before the pandemic. I miss fine dining, casual dining, grabbing a drink downtown, and asking outrageous and inappropriate questions of our friends in person instead of through Zoom. Irreverence doesn’t carry the same punch in two dimensions…
To read the entire piece at multiplesclerosis.net, click here
7 Replies to “I Am Feeling the Itch”
Thank you so much for sharing about what it is like to be disabled. So brave and it helps so many of us! As a disabled person myself, I understand a little bit about what you are saying about missing aspects of the before. I especially miss being able to get to friends, in-person, myself (although everyone is doing that much-much less right now). Anyhoo, in your honor I’m going to try not to scratch any itches all day. And if I have any on my face, I’m going to try your tactic of using facial muscles to see what that is like.
Amy, thanks so much for stopping by and leaving a comment. I appreciate your itching experiment today, but please, if it begins to drive you crazy, do what you have to do!
It’s what you don’t expect that gets you. I always expected MS to affect my bladder, so when I had trouble in that area one morning, it didn’t phase me too much. The walking and spasticity problems have been progressing to the point of needing a wheelchair, but the rate of advancement still shocks me. Not being able to turn over in bed….that was one I didn’t even know to anticipate, so it hits me hard at night. I was just in the dentist chair this morning and scratched my nose. I thought to myself, “I’m so glad I can still easily do that!” But, there’s going to be something else, so sneaky and nefarious, that I don’t even anticipate being taken away.
Sandra, thanks so much for stopping by and commenting. Yes, once you can’t roll over in bed it’s time to get special mattresses or mattress covers to keep from getting bedsores.
Thanks for the tip! Can you recommend any?
Yes, I like this inexpensive pad at Amazon: https://www.amazon.com/Drive-Medical-Alternating-Pressure-Variable/dp/B002VWK1BI
Mitch, thank you so much. I will look into this. I wasn’t even thinking about the consequences of the immobility.
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