9 Replies to “What Not to Say to a Person With MS”

1. This is great–thank you so much for posting this. My husband and I were inundated with “natural cures” and sometimes forcefully. We were going through enough , but now I had to say no thank you to people who were telling me there particular remedy cured MS (and diabetes, and heart disease…)

   1. Shari, isn’t that annoying? I know they mean well but, my goodness, it does get old quickly.

2. Thanks Mitch,
   Can’t say that enough. It got me thinking about what to say back to people who felt they needed to say something but hadn’t a clue. It must make you feel very uncomfortable to see me and not get any better —me too. It’s a vicious disease and as soon as you think you are getting a handle on it it changes. I’ve had people say to me that I’m an inspiration – I say” thank you. ” but I don’t feel I have much choice.
   -Hans

   1. Hans, you’re right. These poor folks really don’t know what to say. That’s why you and I are here to help them!

3. Yay Mitch! (as usual–so well said!)
   Say, can you fill me in on multiplesclerosis.net? I must have missed the memo on this. Who sponsors it, how did you happen to start using it?
   Thanks!

   1. Daphne, here is where I talked about them:

      https://enjoyingtheride.com/2019/05/01/multiplesclerosis-net/

      They have a platform where I can reach more people than I can on my own, yet I still keep my blog active and independent from them.

      1. I wondered that too. Thanks for the clarification.

4. I’ve received too many suggestions for how I can cure my MS by changing my diet. I stopped looking at books after realizing that they contradict each other. I eat a healthy diet with small amounts of treats. That’s enough to feed my body and spirit.

   1. YES! You are so right. A sensible diet makes the most sense to me, too. I only wish I was better at it 🙁

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