I don’t want to die, but neither do I fear death. The reason I don’t want to die is that I hate the thought of not knowing what happens next. I want to see how this whole MS thing works out. What was the cause, and what year did they find a cure? How much… Continue reading The Wrong Side of History
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A Letter to My Healthier Self
I scour the earth for blog post ideas, and today I stumbled upon a good one. I like it when a person writes a letter to their younger self, and they impart wisdom learned through the travails of life. That gave me an idea for a blog post: A Letter to My Healthier… Continue reading A Letter to My Healthier Self
My Second Round of Ocrevus
Today I spent seven and a half hours at the cancer infusion center. That’s how long the entire Ocrevus infusion took, including an hour for pre-meds and an hour afterward for observation. If I were to apply Lean Manufacturing Principles (an engineering thing) to this process, I think we could have done it in about… Continue reading My Second Round of Ocrevus
Thoughts on Coping
I can no longer type, and I can’t hold a book. I am unable to raise my arm high enough to wave at a friend. I am incapable of getting into bed by myself. I can’t eat, dress, or bathe without assistance. I need help to blow my nose. There are far too… Continue reading Thoughts on Coping
2018 Cruise Post #4 — Ports of Call
On this 8-night cruise, we made only three ports of call, given that we spent two and a half days traveling from New Jersey to warm weather and back. Port Canaveral We left Bayonne, New Jersey on a cool Saturday afternoon. By Sunday, it was warm enough to walk on the deck but not to… Continue reading 2018 Cruise Post #4 — Ports of Call
2018 Cruise Post #3 — Adventures on the Ship
This freaking cruise ship, Anthem of the Seas, is a floating city. Not Boston or San Francisco or Seattle, but more like Las Vegas, New Orleans, or Key West. Other than eating and drinking, here are a few other things we enjoyed. Kim did a little rock climbing. Kim also tried out the skydiving simulator.… Continue reading 2018 Cruise Post #3 — Adventures on the Ship
2018 Cruise Post #2 — Dining and Drinking
Average cruisers gain about one pound per day. I’m an average cruiser. Kim isn’t. She takes the stairs whenever possible and chases me around in my wheelchair all week such that she hardly gains any weight. Not fair. The food is so good on a cruise. Meals at the main dining room are included in… Continue reading 2018 Cruise Post #2 — Dining and Drinking
2018 Cruise Post #1 — What’s the Word for “Planning and Execution?”
Logistics — the planning and execution of complex operations. Yes, that’s it. I remember the first time I heard of someone being called a “Manager of Logistics.” I laughed out loud. I considered it a made-up name, along the lines of “Special Projects.” No more. For both professional and personal reasons, I have a profound… Continue reading 2018 Cruise Post #1 — What’s the Word for “Planning and Execution?”
A Cure for the Winter Doldrums
As I sit in my luxurious wheelchair, I almost feel guilty. The healthy folks around me must endure less elaborate, less comfortable chairs. Theirs don’t transform into an infinite number of positions at the push of a button. Theirs don’t lie flat for sleeping or elevate to reach things. I suppose that’s why they don’t… Continue reading A Cure for the Winter Doldrums
Tribalism
I’ve been thinking about tribalism a lot lately. Seems to be everywhere. Seems to be a big problem. Teams With sports fans, tribalism is largely harmless. My Patriots played in the Super Bowl this weekend, again, and I very much wanted them to win. However, when they didn’t, I said to myself, “Well, we can’t… Continue reading Tribalism