Category: Uncategorized

This post isn’t about sex; that’s a separate topic that I could address here someday, but I probably won’t. Also, this isn’t about physical therapy, professional massage, or contact between a caregiver and a disabled person while showering, getting dressed, etc. It’s about loving, tender, nonsexual intimacy. For most of my life, I’ve not been… Continue reading Wheelchair Users Need Physical Intimacy Too

Thank you in advance for indulging me on this off-topic post. I thought some you might enjoy it. In the summer of 2000, Kim and I decided to quit our jobs in northern Maine and move to the more populous southern Maine coast. Kim started her new job at Cape Elizabeth Middle School in late… Continue reading I Found an Old Email

As I’ve become more disabled, we’ve had to invent new ways to accomplish even the simplest tasks. Kim and I have developed processes for me to brush my teeth, shave, and eat various foods. We’ve also figured out ways for her to help me shower, get dressed, and get into and out of bed. The… Continue reading Persistence and Creativity

I was interviewed earlier today by a health marketing company. Don’t look for a magazine article about me, though. These folks are conducting research on primary progressive multiple sclerosis (PPMS) by speaking with patients. The marketing company paid me for my time with a $75 gift certificate from Amazon.com. I must remember to buy something… Continue reading The Hardest Thing about Having MS

Kim and I attended a wedding in Massachusetts last summer. Throughout the ceremony and at the reception, I noticed a lady in her thirties using forearm crutches. My MS radar came on, and I grew confident. I encountered her when we were both leaving, and I asked, “MS?” “Yup.” Score! We enjoyed a long conversation… Continue reading My MS Radar and Other Intuitive Devices

I’ve always said I couldn’t own a restaurant, because if people didn’t show up in droves for every meal I would take it personally. It turns out that having a blog is just as bad. If large numbers of people don’t visit each day I wonder what’s wrong with me. So, in my typical self-absorbed… Continue reading Top 10 Reasons You Don’t Read My Blog

I don’t give a damn about other people’s weather, and here I am writing about mine. At least I have an angle – the wheelchair angle. My life is so different in winter as compared to summer. In warm weather the area I can independently navigate is large. It starts with the wooden deck and… Continue reading I am Reluctantly Writing About the Weather

When I set out to write this book about my mother and me, I interviewed a lot of people who knew her back in the day. With very few exceptions, these folks are now old people*, and I don’t think they mind me describing them as such. I accomplished what I set out to do… Continue reading Talk to Old People

In February I had annual checkups with my primary care physician and my neurologist, two doctors I’ve seen for almost fifteen years now. Both are wonderful individuals who I enjoy spending time with. It’s a good thing I do, because there’s very little to discuss on the medical front these days. I’m not finding fault… Continue reading Say Hello to Kim