Category: Uncategorized

…what would I do with it? Imagine somebody invented a pill which restores the health of a person with MS to the point just before their symptoms began to show. However, the effect of the pill lasts only 24 hours, and then the person returns to their previous condition. This pill only works the first… Continue reading If I Was Given One Healthy Day…

There are a number of ways that life is more tolerable for people with MS today than twenty or more years ago. One of the most important improvements is our ability to connect with one another through the internet. Misery loves company. Since my diagnosis in 2001, I’ve been a member of several online communities.… Continue reading At Least I’m Not Alone

I can’t just say to Kim, “Pass me the remote.” That could be any of almost twenty devices that I work with. Everyone has a lot of remotes, but I rely on them a little bit more than the average person. I spend all my time in one of two places – my computer station… Continue reading My Remote Life

Because the flight to Vegas had been so uncomfortable, I dreaded the trip home. But the things I was worried about went fine, and something I would have never guessed could go wrong did. While waiting in the Las Vegas airport for our flight home on Friday morning, I heard, “Now boarding flight blah blah… Continue reading Las Vegas Trip 2014-2015, Part Five, Conclusion

Just before midnight on New Year’s Eve, we walked outside onto the Vegas strip to take in the fireworks show. I braced myself for the unusually cold weather they were experiencing, but it didn’t feel so bad. I guess the camaraderie of hundreds of thousands of revelers warmed the atmosphere. My childhood best friend, Dave,… Continue reading Las Vegas Trip 2014-2015, Part Four

By the time we checked in at the hotel it was about 5:00 PM local time, which felt like 8:00 to us, after a night where Kim and I each slept about two hours. But we got our second wind. This was Kim’s fiftieth birthday after all, and we were finally in Vegas, so there… Continue reading Las Vegas Trip 2014-2015, Part Three

On Kim’s fiftieth birthday, which would be twenty-seven hours long this year, we got up at 3:45 AM and traveled westward most of the day. This was not exactly ideal birthday fun. I boarded our 7:00 AM flight from Portland to Philadelphia pretty much like I have for years. Just outside of the mouth of the plane I… Continue reading Las Vegas Trip 2014-2015, Part Two

When a group of people invokes the “Let’s go to Vegas!” toast at a bar, 99% of the time the idea crumbles under its own weight by the next morning. But on this night in January of 2014, we were in the 1%. The trip was conceived while the six of us – my two… Continue reading Las Vegas Trip 2014-2015, Part One

It’s that time again, when I take a moment to assess what I’ve gained and lost in the past year, and what changes may await me in the coming year. As you know, I try to strike a balance. I don’t sugarcoat my condition, but neither do I wallow in self-pity. Mine should by no… Continue reading Annual Report 2014

Kim and I would like to to thank everyone for sharing in our journey again this year. Those of you who actively participate at this website as well as those who simply read my posts in anonymity, all help make our days more interesting and meaningful. If you celebrate Christmas, or even if you don’t… Continue reading Thank You and Happy Holidays!