My dear friend, Kate Milliken, called me a few months ago to see if I would be part of a short documentary she was co–producing with David Kuhn from the esteemed Nantucket Project. The film would be funded by a grant from the Swiss pharmaceutical company, Novartis. “Yes.” “Don’t you want to know the details… Continue reading A Beautiful Movie About People With MS — and We’re In It
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Dispatches from CoronaVille – Post #3 – View from the Apex
The people who study such things have concluded that most of the United States is at or near the apex of this coronavirus pandemic. Life at the apex is a duality. The following two statements, it could be argued, are equally correct: “Things have never been worse,” or “Things should only get better from here.” … Continue reading Dispatches from CoronaVille – Post #3 – View from the Apex
A Look Inside My Smart Home
Click here to see the video I made for multiplesclerosis.net
Dispatches from CoronaVille – Post #2
A Thought from My Brother, Andy He posted this on his Facebook timeline: “I have to admit, I really didn’t appreciate what I had until I could no longer have it. The freedom to move about and go wherever I wanted to go, when I wanted to go, how I went there, was truly freedom… Continue reading Dispatches from CoronaVille – Post #2
Dispatches from CoronaVille – Post #1
Let’s give this a try: more frequent, shorter blog posts, with a mixture of hard truth, social media humor, and irreverent observations about life with our little pandemic. Dispatches – what they used to call news reports from the field back in the old days, like World War II. This, being the most significant disruption… Continue reading Dispatches from CoronaVille – Post #1
Man versus Coronavirus
If you’re looking for updated information on the spread of the coronavirus, or medical advice about how it might affect people with MS, or restrained commentary of any kind, this is not the post for you. If you want an irreverent account of how the threat of the coronavirus is affecting one man with MS, keep… Continue reading Man versus Coronavirus
Novartis Innovation Prize Finalists
Recently, Novartis invited me to be a judge for their Innovation Prize, which will award $250,000 to the most promising new technology for people with MS. Over 100 innovators applied. Click here to see the ten finalists. The winner, and the $50,000 runner-up, will be announced at the South by Southwest Festival (SXSW) in Austin,… Continue reading Novartis Innovation Prize Finalists
Thinking About Writing That Memoir? Read This First
There are so many ways to share your personal story. One of the most audacious is to write a book. I know this, because I published my memoir in 2018, entitled ENJOYING THE RIDE: Two Generations of Tragedy and Triumph. Let’s take a high-level look at the steps involved. To read the rest of this… Continue reading Thinking About Writing That Memoir? Read This First
I Am Helping With the Novartis Innovation Prize
Novartis is offering a $250,000 prize to fund the development of pioneering innovation with great potential in advancing Assistive Tech for Multiple Sclerosis. Applications will be accepted until January 10, 2020, and the winners will be announced during a panel discussion among experts in the field at SXSW in Austin, Texas. As many of you… Continue reading I Am Helping With the Novartis Innovation Prize
2019 Annual Report
Eighteen years is a long time to have had MS. Unimpressed by that number? How about the fact that I’ve lived with MS for upwards of five billion seconds, and I haven’t taken a single one of them off? Welcome to my Annual Report post where I consider what I’ve gained and lost in the… Continue reading 2019 Annual Report