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CCSVI Treatment – Let’s Give This One More Try

On Wednesday, March 16, 2011, I will undergo a second round of CCSVI treatment, in a determined if not desperate attempt to slow the progression of my MS. This procedure will be performed by Dr. Gary Siskin, the chairman of the Radiology Department at Albany Medical Center. Why am I putting myself through this? Haven’t… Continue reading CCSVI Treatment – Let’s Give This One More Try

CCSVI Diagnosis and Treatment Log Entry #11 – Six Month Report

“The truth does not change according to our ability to stomach it.” – Flannery O’Connor Here’s a bit of truth: CCSVI treatment didn’t work for me. I saw no improvement in my condition from the treatment I received on March 17, 2010. But that didn’t surprise me. I wasn’t looking for improvements in my symptoms.… Continue reading CCSVI Diagnosis and Treatment Log Entry #11 – Six Month Report

CCSVI Diagnosis and Treatment Log Entry #10 – Results of My Ultrasound Examination

Image by meironke via Flickr It is only possible to live happily ever after on a day-to-day basis.   – Margaret Bonnano Now that Kim and I have travelled to New York City three times in the past five months, for CCSVI related reasons, I find myself growing negligent in my sworn duty to hate… Continue reading CCSVI Diagnosis and Treatment Log Entry #10 – Results of My Ultrasound Examination

CCSVI Diagnosis and Treatment Log Entry #9 – 12 Week Update

Everyone wants to know how I’m doing after my CCSVI procedure. The answer is…I feel exactly the same as I did before my visit to Dr. Sclafani.  That may sound like bad news, but maybe it is, and maybe it isn’t. Some people are personally invested in my outcome because they know me and care… Continue reading CCSVI Diagnosis and Treatment Log Entry #9 – 12 Week Update

CCSVI- Diagnosis and Treatment Log Entry #8- My Final Thoughts

(Photo credit: Wikipedia) The world is a tragedy to those who feel, but a comedy to those who think.  – Horace Walpole My journey through CCSVI self-education, diagnosis, and treatment has been one of the most remarkable experiences of my life, whether or not I ever see any benefit from it. So with all that… Continue reading CCSVI- Diagnosis and Treatment Log Entry #8- My Final Thoughts

CCSVI- Diagnosis and Treatment Log Entry #7

In Log Entry #6 I wrote about what the experience was like for me during the actual CCSVI procedure. Here, in Log Entry #7, I’ll get into the details about the abnormalities that were found, and the actions taken to correct them. To catch up on my complete CCSVI Diagnosis and Treatment log, click here (and… Continue reading CCSVI- Diagnosis and Treatment Log Entry #7

CCSVI- Diagnosis and Treatment Log Entry #6

“Life is either a daring adventure or nothing.”  Helen Keller I can’t recall the precise moment when I decided that CCSVI was a legitimate theory about the root cause of MS. Probably it was in October of 2009. I was influenced, like so many of us are, by my friend the Wheelchair Kamikaze. If he… Continue reading CCSVI- Diagnosis and Treatment Log Entry #6

Merry Disabled Christmas 2012

From 2010… Merry Disabled Christmas Image via WikipediaThis year I endured disabled surgery And read disabled books I contributed to a disabled charity And thwarted disabled crooks I sailed on a disabled cruise And piloted my disabled iBot I sat for disabled interviews And the good disabled fight, I fought I starved myself on a disabled diet  And took a disabled shot at a deer I… Continue reading Merry Disabled Christmas 2012

Happy Holidays 2011

(Photo credit: paparutzi) This little blog brings me great joy.  I’ve been able to connect with so many wonderful people who I otherwise would never have come to know.  The notion that my writing has helped a few folks in any way is the icing on the cake. So, thank you so much for stopping… Continue reading Happy Holidays 2011