Category: Uncategorized

The Buffalo Neuroimaging Analysis Center (BNAC) is a world-class center for MS research. As with all academic research, however, it can be difficult for patients to read and understand their published reports.  I’m on the Patient Advisory Council for BNAC, and we have embarked on an effort to make academic research more accessible to patients.… Continue reading A Better Way to Measure MS Progression

I don’t want to be an inspiration. I only want to inspire. If you exhibit visible MS symptoms then someone, somewhere, sometime may have called you an “inspiration.” I’ve been called worse, but I still don’t like it… To read my full blog post at MultipleSclerosis.net, click here.

I have no excuse. Here is something of an update. It’s the least I can do. My health has deteriorated at about the same pace as it has been deteriorating for the past 22 years. The problem is, I don’t have much runway left. But I have some. Above the neck, I’m still okay. I… Continue reading Forgive Me My Absence

If you are fortunate enough to be in a position to contribute to charitable causes, I ask you to consider this organization so close to my heart. 3i Housing of Maine is building a 50 unit, accessible, affordable housing complex in Scarborough, Maine. Please watch the video below, and visit our website. Any amount is… Continue reading It’s Giving Tuesday

Clinical Trial Opportunity I love what they are doing at the University of Pittsburgh Department of Rehabilitation Science and Technology. These folks are investigating the use of smart home technology as assistive technology, just like I’m doing informally in my home. If you have a physical disability, and are interested in helping them develop an… Continue reading Clinical Trial Opportunity

I would never say that someone has only a little multiple sclerosis. It’s a horrible disease in all its manifestations. But I’m quite comfortable in saying that a few of us have a whole lot of MS. The most severe types of MS have not been thoroughly studied because they occur less often, and they… Continue reading CASA-MS: Something for Those of Us With a Lot of MS

I was recently asked to give a talk at a TEDx event at Cape Elizabeth High School. Of course, I couldn’t do it without Kim, who became the star of the show!

My passion these days, and the primary reason I have been neglecting my blog of late, is accessible housing and 3i Housing of Maine. We have reached agreement on a site in Greater Portland and expect to break ground in the fall of this year on our pilot project. Announcements are forthcoming. In the meantime,… Continue reading 3i Home – We are Interviewed About Accessible Housing

I am proud to serve as a Board member with 3i HoME, a non-profit on a mission to effect real change for our families, friends, and colleagues living with disabilities. My passion for this project is one of the things that gets me up and out of bed each morning.  As we prepare to begin… Continue reading 3i Home — My Personal Ask for Giving Tuesday

Last week marked the 20-year anniversary of my MS diagnosis. As a society, we place extra emphasis on round-number anniversaries like the 20th. But for me, this one is significant for another reason… To read the full blog post at MultipleSclerosis.net, click here.