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Fifteen years is a long time to have MS, especially one day at a time. Welcome to my annual post where I take a moment to consider what I’ve gained and lost in the past year, and what changes may await me in the coming one. As you know, I try to strike a balance.… Continue reading Annual Report 2016

The rule of thumb is that full-time users get a new wheelchair every five years. Let me do some quick math…holy shit, it’s time! Think about your level of excitement when you buy a new car, then multiply that by a factor of 100. Now you have some idea how I feel about getting a… Continue reading Standing Up to MS

Here is a link to the article on primary progressive MS, where I am mentioned in the opening and closing paragraphs. I’m pleased that the author doesn’t sugarcoat the outlook for people like me. Here is a link to the larger MS supplement, which includes six other articles —a must read for anyone affected by… Continue reading I’m Interviewed for the Journal Nature

  As a full-time wheelchair user, and someone who no longer works, I spend the better part of each day indoors, by myself. It’s not so bad, however, because I live in a glass house. Two sides of my living room are nothing but windows—an observatory of sorts. When my eyes are not glued to… Continue reading Neighborhood Watch

I can still remember the questions I pondered as a child: What will my job be when I grow up? Who will I marry? (Will she be hot?) Where will I live? How many kids will I have? Will I grow old?  How old? I also recall some of the promises I made to myself as… Continue reading Have I Betrayed My Childhood Self?

At the risk of over-tooting my own horn, I wanted to share with you another awesome piece of news. Bangor Metro Magazine, which services mid-coast, eastern, and northern Maine, recently contacted Kim and me for an interview. Click here to read the piece. At one point I recount how 17 years ago my family doctor… Continue reading Bangor Metro Magazine Features Story on Kim and Me

I’ve always been a huge fan of Down East Magazine, widely considered the best magazine about life in Maine. No matter how bookish you may be, no matter how learned in the written word, it’s the stunning photography that draws you into the magazine. Only after you find a comfortable spot to delve into the… Continue reading Down East Magazine Publishes an Excerpt From My Memoir

Hope can be an effective tool to ease human suffering. In many cases, though, it’s not enough. After my diagnosis 15 years ago, I set out to become the most informed patient on the planet. Even though there were no FDA-approved treatments for primary progressive multiple sclerosis (and there still aren’t), I knew the answer… Continue reading As Hope Fades, I Press on: Here’s How