Like so many family-oriented couples, Kim and I found ourselves approaching the empty nest stage of our lives having never enjoyed a romantic vacation without the kids. A cruise holiday had always been on our bucket list, but we never even had a serious discussion about embarking on one. One morning this past winter I… Continue reading My Disabled Cruise Story – Chapter 1 – Herding Cripples is Easier than Herding Cats
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My MS Story Chapter 34- Tell Me About the Bathroom
Life is like a movie-since there aren’t any commercial breaks, you have to get up and go to the bathroom in the middle of it. Garry Trudeau A select few of us have legs that don’t work but a bladder that still does. I assume that we constitute a minority of wheelchair users in that… Continue reading My MS Story Chapter 34- Tell Me About the Bathroom
CCSVI- Diagnosis and Treatment Log Entry #8- My Final Thoughts
(Photo credit: Wikipedia) The world is a tragedy to those who feel, but a comedy to those who think. – Horace Walpole My journey through CCSVI self-education, diagnosis, and treatment has been one of the most remarkable experiences of my life, whether or not I ever see any benefit from it. So with all that… Continue reading CCSVI- Diagnosis and Treatment Log Entry #8- My Final Thoughts
CCSVI- Diagnosis and Treatment Log Entry #7
In Log Entry #6 I wrote about what the experience was like for me during the actual CCSVI procedure. Here, in Log Entry #7, I’ll get into the details about the abnormalities that were found, and the actions taken to correct them. To catch up on my complete CCSVI Diagnosis and Treatment log, click here (and… Continue reading CCSVI- Diagnosis and Treatment Log Entry #7
CCSVI- Diagnosis and Treatment Log Entry #6
“Life is either a daring adventure or nothing.” Helen Keller I can’t recall the precise moment when I decided that CCSVI was a legitimate theory about the root cause of MS. Probably it was in October of 2009. I was influenced, like so many of us are, by my friend the Wheelchair Kamikaze. If he… Continue reading CCSVI- Diagnosis and Treatment Log Entry #6
CCSVI- Diagnosis and Treatment Log Entry #5
Just a short note to let everyone know that today’s procedure went well. Dr. Sclafani successfully used angioplasty on both of my jugular veins and my azygos vein. I have a meeting with him tomorrow where I’ll get more details on just how severe the stenosis was. I’m in my hotel room now, and expect… Continue reading CCSVI- Diagnosis and Treatment Log Entry #5
CCSVI- Diagnosis and Treatment Log Entry #4
I have a couple of hours to kill before I leave for the hospital this morning for my CCSVI venogram and possible angioplasty, so I thought I’d blog for a few minutes. I was critical of MRV’s and ultrasounds in my post last night. Let me qualify that a little bit. For someone in my… Continue reading CCSVI- Diagnosis and Treatment Log Entry #4
CCSVI- Diagnosis and Treatment Log Entry #3
The most exciting phrase to hear in science, the one that heralds new discoveries, is not ‘Eureka!’ (I found it!) but ‘That’s funny …’ – Isaac Asimov If yesterday showed King’s County Hospital Center at its worst- slow service, confusion, piles and piles of sometimes redundant paperwork- then today revealed the hospital at its… Continue reading CCSVI- Diagnosis and Treatment Log Entry #3
CCSVI- Diagnosis and Treatment Log Entry #2
Today was a day of hurry up and wait. Nothing accomplished other than paperwork, etc. Tomorrow should be busy with MRV, Ultrasound, and consults. It’s late, and today was uneventful, so this post will be short. Why is it late, you ask? Well, Kim and I went to dinner in Manhattan with a group that… Continue reading CCSVI- Diagnosis and Treatment Log Entry #2
CCSVI- Diagnosis and Treatment Log Entry #1
(Photo credit: Wikipedia) As I indicated in my previous post, this is my CCSVI week- diagnosis and hopefully treatment. I plan to update this blog frequently with details of my adventure. This post is installment #1. My lovely wife and I made the trek from Maine to our hotel room- a 5 hour drive without… Continue reading CCSVI- Diagnosis and Treatment Log Entry #1