Consider These Issues…

Lemmings
Lemmings (Photo credit: KAZVorpal)

…because I can’t decide on just one topic this week.

Quote of the Week

“There’s a whiff of the lynch mob or the lemming migration about any overlarge concentration of like-thinking individuals, no matter how virtuous their cause.”  – P. J. O’Rourke

Kiva

Microloans are a wonderful way to add a little intimacy to your charitable giving. I’ve chosen a platform called Kiva.org where I can learn about all the loan candidates and choose an individual whose business plan or cause appeals to me. I put a certain amount of money in a fund with lots of other folks, and each month the borrower makes a payment to me and the other lenders. The borrowers do pay interest, but that doesn’t go to me. That goes toward maintaining the program. My plan is that once my initial loan is paid back, in approximately a year, I’ll keep my money in the bank and make another loan, and so on, and so on. Check it out.

The Reliability of Medical Research

I’ve always considered the gold standard for medical research to be studies that are double-blinded and placebo-controlled. This means that there is a group of patients receiving the treatment and there is a group of patients receiving a placebo, and neither the patients nor the doctors involved with the patients know who is who. Only in this way can bias be eliminated from the results.

However, this article shoots holes in that standard as well, and I have to agree. As long as there are financial or career advancement incentives to produce certain results, usually positive results, bias can find its way into even the most rigorously designed studies. Damn.

Be Suspicious of Stories

As human beings we love to hear a story. We want the world to make sense, and stories often leave us with that comforting impression. In our stories however, we impose order and meaning where often there is none, and this can be misleading.

Of course, you could argue that this Ted talk is itself a story, but that just makes my head hurt. Please watch this and let me know what you think.

15 Things That You Should Give up to Be Happy

I’m not 100% bought into the whole Zen philosophy thing, but I find much of it to be very practical advice. A lot of this thinking runs counter to the Type A personalities that serve as models for success in the United States. This article suggests 15 personal characteristics that we would be better off without. I agree most strongly with items 3, 6, 9, and 15.

The Most Astounding Fact about the Universe

Neil deGrasse Tyson is a brilliant astrophysicist. Recently, he was asked the question, “What is the most astounding fact that you can tell us about the universe?” I very much like his answer – which he gives in this three minute video.

De-extinction

As is so often the case, science fiction may have had the right idea, in the form of the movie Jurassic Park. But this video doesn’t sound nearly as scary.

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Consider These Issues…

Symbol of Confusion
(Photo credit: Wikipedia)

…because I can’t decide on just one topic this week.


Quote of the week


Agree or disagree?

“The reason people find it so hard to be happy is that they always see the past better than it was, the present worse than it is, and the future less resolved than it will be.” Marcel Pagnol

Many people suffering from progressive diseases would disagree, but more on this quote later…

WEGO Health Activist Awards


WEGO sponsors health activist awards to honor leaders who make a real difference in healthcare through their online efforts. One or more of you was kind enough to nominate me this year for “Best in Show Blog.” Thank you. Please look over all the award categories and nominate your favorite online health activists.

Update on Intrathecal Methotrexate

As I explained here, I now believe that intrathecal methotrexate is having a significant, positive effect on my disease progression. I’m not getting better, but I’m getting worse more slowly or not at all (for the moment).

This week I had my sixth spinal infusion of methotrexate. It went horribly. The doctor spent a long time poking and prodding before he found the spot. I don’t blame him. I seem to be anatomically challenged in this regard. But most importantly, I suffered no post-lumbar puncture headache, and I am no worse off for the harrowing experience. It’s a small price to pay.

Update on Christmas Cards


I recently spent an entire post describing how I would still send out traditional Christmas cards this year. The very next day I received such a lovely, online Christmas card that I was swayed. So I sent out about half of my cards this year as the online variety. Check out this website. I think it’s amazing.

images (1)Subjects I May Blog about in 2013


I’ve been percolating on a few ideas for blog posts next year.

  • Self-driving cars: This technology is advancing rapidly. Why do I care? Because if I can own a self driving car, I’ll be essentially back in the solo driving business, as will many disabled people.
  • Euthanasia: I’ve long been a believer that it is an individual’s right to die according to their own wishes. As a person with a condition which could at some point render life unbearable, this issue is particularly relevant for me, and I wish to advocate for others who feel the same way. Don’t worry, I’m very far from pulling the trigger, so to speak, myself. This is a potentially touchy subject, so I want to have some research complete before I launch my advocacy efforts.
  • Disabled travel: Kim and I have a winter vacation planned in Jamaica this year. You can be sure that I’ll write several posts about the trip, and share photos as well.
  • Continued updates on intrathecal methotrexate.
  • My neighborhood overhaul: Throughout the summer of 2012 my entire neighborhood was refurbished. We have new street tops, sidewalks, and attractive landscaping. Wheelchair accessibility wasn’t bad, but now it is even better. At some point I will make a “Neighborhood Excursion” video and share it with you. I may have missed the weather window for this year, so look for a video in the spring.
  • Another video blog: My first video blog last year, My Pet Peeves, was well received. These Vlogs are a lot of work to produce, so I haven’t attempted one since, but I hope to in 2013. Any suggestions for the subject matter?
  • Continued updates on Save the iBot: Unless something changes in the next 12 months, 2013 will be the last year that the iBot is supported for service and parts. But stay tuned, because I haven’t given up yet, and neither has America’s Huey 091 Foundation.
  • Memories: From time to time I will ask that you indulge me as I write about certain memories of mine that may be unrelated to multiple sclerosis or disability altogether.
  • Recycled posts: The most dedicated readers among you may have noticed that several of my posts this year were updated versions of posts from previous years. I reserve the right to do that because I usually improve the post from its original, and let’s face it, some weeks I just don’t have time or energy to come up with original material.

Thoughts on Violence


For those of you who cite the Sandy Hook school slayings as further confirmation of the moral decline of our society, or as further evidence that violence in our modern world is getting worse by the day, I have some good news for you. Recent events notwithstanding, the overall level of violence in the world is declining, and has been for a long time, despite what our 24/7 media outlets would have us think.

This long-term trend towards less worldwide violence is expounded upon in some detail by Steven Pinker in his outstanding book The Better Angels of Our Nature. If you don’t want to tackle this 832 page behemoth, but you’d still like to hear the basic arguments, then I suggest you watch this TED video.

By no means am I trying to downplay the horror of what happened at Sandy Hook or other well known mass-murders. The world is still a violent and scary place, and we need to continue to advocate for social change that deters events like this from happening. But just know that, in the big picture, we live in the most peaceful time that mankind has ever known.

This is where I think Marcel Pagnol’s quote hits the mark.

“The reason people find it so hard to be happy is that they always see the past better than it was, the present worse than it is, and the future less resolved than it will be.”

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Consider These Issues…

Symbol of Confusion
(Photo credit: Wikipedia)

…because I can’t decide on just one topic this week.
 
Quote of the Week

“The fundamental cause of the trouble is that in the modern world the stupid are cocksure while the intelligent are full of doubt.”  Bertrand Russell

I’d like to think I belong to the second group. I am certainly full of doubt…

Hope for the iBot

As you may know, the iBot, this incredible personal mobility device that I’ve enjoyed for almost 4 years now, is in danger of becoming extinct. There is some good news, however. America’s Huey 091 Foundation is working with the inventor, Dean Kamen, to resurrect the iBot. Here’s an article on that effort.

There are many hurdles remaining, but at least there is some hope for the iBot.

Myelin repair

The Myelin Repair Foundation (MRF) is attempting to change the world of medical research, beginning with multiple sclerosis. MRF has identified systemic bottlenecks in the drug research and approval processes, and is working on innovative solutions. Please watch their compelling video here.

Intrathecal Methotrexate

In February I disclosed my latest experimental treatment regimen – intrathecal methotrexate. This involves injecting a chemotherapy drug directly into my spinal column once every eight weeks. I had my first such treatment on March 5, without incident. My second infusion is scheduled for next Monday, April 30. I expect that it will take me many months to determine whether the treatment is effective or not. Wish me luck.

Maine is Peaceful

My home state of Maine, and in particular the region around Portland, where I live, consistently shows up in lists of best places to live and/or visit. The most recent such list was reported on by USAToday. It turns out that Maine is the most peaceful state in the nation. I like that. To see the report, click here, and then have yourself a very peaceful day. I plan to.

Last Week’s Atheist Posts

Last week I issued a two-part post where I “came out” as an atheist. I feared that I might lose many readers as a result, but that has not been the case. I’d like to thank everyone for your understanding and support, and for keeping an open mind.

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