My iBOT Gets Recharged

Like a cat with nine lives, my iBOT wheelchair keeps cheating death.

For those of you not in the know, the iBOT is the most incredible wheelchair ever built. Unfortunately, due to bureaucratic red tape and insurance company cold-heartedness, this wheelchair is no longer manufactured or sold. A couple of years ago, the previous manufacturer, Independence Technology, stopped supporting it with parts and service. I’ve been holding my breath ever since.

Finally, a few weeks ago, my batteries began to fail. Other iBOT owners have toyed around with various companies that claimed to be able to recharge spent batteries. These attempts proved frustrating in terms of both product quality and customer service. I began to think that when my batteries failed my iBOT experience would be over. Not so fast.

I checked in at our users’ group on Facebook called Save the iBOT to see if anyone had found a new battery vendor. A couple of folks had used a company in Washington, and one user had reported good results. I obtained the contact information and called Tom at Battery Pack Rebuilders. Indeed, Tom explained, he had rebuilt three sets of iBOT batteries and they all seemed to be working well. Even better, his fee for rebuilding batteries was lower than Independence Technology’s.

I explained to Tom that I had an important event coming up on August 20, and asked if he could expedite the turnaround. He said he could. In fact, he received my batteries on a Friday, worked on them on Saturday, and shipped them back to me on Monday. I have run them through an entire cycle and they appear to be functioning just as well as the batteries from Independence Technology.

There are still a million things that can go wrong with my iBOT, things that I won’t be able to fix. But for now, the iBOT lives to see another day, and this coming Saturday will be a very special day. Check back next week to read more about it.

To see me and my iBOT in action, check out my YouTube channel.

Read this good news about the next generation of iBOTs.

The Social Psychology Implications of iBot Stair Climbing

Yeah, you read that right. This subject is better suited for a PhD dissertation, but instead I’ll tackle it in a single blog post.

On Saturday night Kim and I went out to dinner with our friends Deb and Steve at the Snow Squall, a local bar and restaurant that we absolutely love. I made reservations for their dining room, as opposed to the pub section where I usually sit. This would require me to descend about four steps in my iBot wheelchair.

In years past I was able to climb stairs myself in the iBot, but I no longer have enough strength and dexterity in my arms. I require Kim’s assistance. We arrived at the Snow squall at six o’clock, and the crowd was thin. Kim guided me down the stairs without incident, and we settled in for a leisurely meal.

Throughout the dinner, more patrons arrived, and soon it was a full house. We finished an outstanding meal (Chef Heather cooks no other type), settled the checks, and prepared to ascend the stairs. Allow me to describe the scene, as I imagine it from the perspective of a random patron who dared to watch:

A dashing gentleman in a power wheelchair backs up against the bottom step. A woman, presumably his much younger wife (is he rich?), strikes an athletic pose behind him, one foot on the first step and the other foot on the second. The gentleman manipulates buttons and knobs on his wheelchair controller such that the seat rises a bit and then tilts to the rear. His wife grabs onto the top of his backrest and pulls. Some motor within the wheelchair engages and boosts the front wheels up and over the rear wheels, and the chair is one step higher. This process continues until the chair, its occupant, and its navigator are at the top of the steps, at which time the gentleman pushes more buttons and knobs, and the chair transforms back to normal. Their demeanor throughout the operation is nonchalant. Apparently, this is part of their routine – how they navigate through a disabled-unfriendly world.

Here’s the social psychology implication. There were perhaps forty people in the lower dining room and another forty in the upper pub area. At least half those people had a clear line of sight to me. Yet, as I scanned the crowd, only a couple of them observed me climb the stairs in my wheelchair. Nearly every one of those people must have been fascinated by my chair’s capabilities. Why didn’t more of them watch? I would have watched.

In our society, it is paramount that we not offend others, especially people who are disadvantaged. And we are on our best manners when we dine at an establishment where the meals cost more than $15. Most of the patrons were probably concerned that watching me climb the stairs would be offensive to me or would constitute an invasion of my privacy. Maybe they thought I hated being seen this way – that I already felt conspicuous enough, and their staring would only make me feel worse. Maybe they didn’t know what they thought, but it just felt wrong to look. Whatever the reason, most of these people either completely ignored me, or they only snuck a peek here and there. What a shame. What a missed opportunity! What a gross over-application of the duty to not offend.

The fact is that I absolutely love to have people watch me climb stairs. I’m an iBot exhibitionist. I get off by demonstrating how technologically advanced my iBot is, how talented my wife is, and how cool I am about the entire process. But these people had no way of knowing this. How could they?

Maybe the responsibility falls squarely on me to let the potential audience know that they are more than welcome to gawk at us, engage us in conversation about it, and applaud enthusiastically at the conclusion of the show. The question becomes, then, how do I convey this message.

One option is for me to clear my throat and in a very loud voice announce, “May I have your attention please? May I have your attention please? I am about to climb these stairs in a wheelchair. This is something you have probably never seen before, and may never see again. I invite you to put down your utensils, grab your drink, and adjust your seats so you have a comfortable view. In no way will I consider your watching to be inappropriate. Frankly, I would be slightly offended if you didn’t watch. This is very cool stuff. There will be a brief question-and-answer period after I get to the top of the stairs.”

In a perfect world, devoid of unnecessary human insecurities and burdensome social constructs, this would be appropriate behavior. But, frankly, I don’t know if I have the cahones. What if everyone ignored me and just continued dining? What if I came off as needy and insecure? What if, what if, what if? No, I think I’ll forgo the opportunity to be an agent for social change, and just keep doing my thing without drawing attention to myself. It’s just too risky.

Note: For those of you who have not seen the iBot in action, click here for a video of us in Jamaica last year, or watch below.

Potpourri

It’s becoming more and more difficult for me to don my winter coat, even with assistance, especially the part where I try to stuff my arms into the sleeves. So I bit the bullet and ordered this ridiculously expensive winter Cape, which has no sleeves. Once I try it out, I’ll give you a review (picture on right). Who else wears a cape: Batman, Superman, the magician at your child’s birthday party.

Marie Suszynski at Everyday Health published a column called Nine MS Myths, Busted. Myth 2, “Everyone with MS Ends up Severely Disabled”, and myth 9, “Everyone with MS Will Quickly and Steadily Get Worse,” are sadly ironic for me. But the rest of the items are pretty sound. Thanks to Stu’s Views & M.S. News for this link.

Apple’s iPhone has an abundance of accessibility features. Click here for a summary.  I also came across this article in USA Today a couple of days ago: Five Things You Had No Idea Your IPhone Could Do. I’m going to try #1, and I’ve already started using #3. (sorry Al)

Maintenance and parts support for the iBot will expire on March 31. I know people are still working on saving the iBot, and I have my fingers crossed. I wasn’t aware that Dean Kamen brought the iBot on the Colbert Report way back in 2006. Watch this clip – very entertaining. Thanks to Cynthia and Charles Riordan for the link.

Here’s a TED talk that everyone with a brain disease, like MS, or anyone who knows someone with a brain disease should watch. Siddharthan Chandran: Can the Damaged Brain Repair Itself? I have little doubt that medical researchers will find a way to repair the damage done by neurological diseases, but will it be soon enough for people like me?

Finally, I wanted to let you know that I have been asked to write another “Men with MS” column in the magazine MS Focus. It will be in the spring issue, and I’ll let you know when it comes out.

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